지원사업
학술연구/단체지원/교육 등 연구자 활동을 지속하도록 DBpia가 지원하고 있어요.
커뮤니티
연구자들이 자신의 연구와 전문성을 널리 알리고, 새로운 협력의 기회를 만들 수 있는 네트워킹 공간이에요.
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초록· 키워드
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Purpose: Information value is created by providing care for specific medical conditions. To assess the appropriate content and time of delivery, a research framework to examine information values at different stages of the care continuum is needed. This study identified essential information to recommend for different stages of Systemic Lupus Erythematosus (SLE) management. Methods: Using Porter"s value chain analysis, we conducted a content analysis of the research literature, clinical practice guidelines, and patient education materials in an education-enabled environment regarding patient with SLE. We also used a natural language processing technique to automatically map the essential information identified into authorized concepts in the National Library of Medicine’s Unified Medical Language Systems. Results: The essential contents in the diagnosis stage pertained to a general understanding of disease manifestation such as SLE definition, pathophysiology, etiology, prognosis, and progress. The intervening stage highlights information about prominent spheres of therapeutic regimens and administration as well as diverse care providers with relevance to their specific roles. While screening information, such as self-awareness of SLE signs, is valued prior to a clinical visit, the monitoring information follows clinical visits to avoid flaring events. The key concepts identified were "butterfly rash" (C0277942), "anti-inflammatory drugs" (C0003211), "SLE" (C0024141), and "antinuclear antibodies" (C0151480). Conclusion: Communication of essential information identified at appropriate care stages can increase patient knowledge and reduce anxiety levels to improve self-care.
목차
INTRODUCTION
METHODS
RESULTS
DISCUSSION
CONCLUSION
REFERENCES
참고문헌 (9)
참고문헌 신청
Jolly M / 2014 / Body image intervention to improve health outcomes in lupus : a pilot study / Journal of Clinical Rheumatology 20(8):403~410
Pai YC / 2010 / The need for nursing instruction in patients receiving steroid pulse therapy for the treatment of autoimmune diseases and the effect of instruction on patient knowledge / BMC Musculoskeletal Disorder 11:217
Singh JA / 2017 / Individualized patient decisionaid for immunosuppressive drugs in women with lupus nephritis : study protocol of a randomized, controlled trial / BMC Musculoskeletal Disorder 18(1):53
Singh JA / 2019 / Individualized decision aid for diverse women with lupus nephritis (IDEA-WON): a randomized controlled trial / PLoS Medicine 16(5)
Konttinen YT / 1991 / Systemic lupus erythematosus patient guide : influence on knowledge of the disease / Annals of the Rheumatic Diseases 50(12):900~902
Pai YC / 2010 / The need for nursing instruction in patients receiving steroid pulse therapy for the treatment of autoimmune diseases and the effect of instruction on patient knowledge / BMC Musculoskeletal Disorder 11:217
Singh JA / 2017 / Individualized patient decisionaid for immunosuppressive drugs in women with lupus nephritis : study protocol of a randomized, controlled trial / BMC Musculoskeletal Disorder 18(1):53
Singh JA / 2019 / Individualized decision aid for diverse women with lupus nephritis (IDEA-WON): a randomized controlled trial / PLoS Medicine 16(5)
Konttinen YT / 1991 / Systemic lupus erythematosus patient guide : influence on knowledge of the disease / Annals of the Rheumatic Diseases 50(12):900~902
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