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논문 기본 정보

자료유형
학술저널
저자정보
Stephanie Christine Brown (University of Otago) Catherine L Wall (University of Otago) Richard B Gearry (University of Otago) Andrew S Day (University of Otago)
저널정보
대한소아소화기영양학회 Pediatric Gastroenterology, Hepatology & Nutrition Pediatric Gastroenterology, Hepatology & Nutrition 제26권 제3호
발행연도
2023.5
수록면
165 - 172 (8page)
DOI
10.5223/pghn.2023.26.3.165

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Crohn’s disease (CD) is a chronic, incurable and relapsing disease involving any part of the gastrointestinal tract and exclusive enteral nutrition (EEN) is first-line therapy. Few studies have examined the patient experience of EEN. The aim of this study was to assess the child’ s experiences of EEN, to identify problematic themes and understand the child’s mindset. Children with CD who previously completed EEN were recruited to complete a survey. All data were analyzed using Microsoft Excel and reported as N (%). Forty-four children (mean age 11.3 years) consented to participate. Sixty-eight percent of children reported limited formula flavors as the most challenging aspect and 68% of children identified ‘support’ to be important. This study highlights the psychological impact of chronic disease and its therapies on children. Providing adequate support is essential to insure EEN is successful. Further studies are required to determine psychological support strategies for children taking EEN.

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