Employment Status and Work-Related Difficulties among Family Members of Terminally Ill Patients Compared with the General Population

Kim, Seon Young; Chang, Yoon-Jung; Do, Young Rok; Kim, Sam Yong; Park, Sang Yoon; Jeong, Hyun Sik; Kang, Jung Hun; Kim, Si-Yung; Ro, Jung Sil; Lee, Jung Lim; Lee, Woo Jin; Park, Sook Ryun; Yun, Young Ho

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자료유형: 학술저널

저자정보: Kim, Seon Young (National Cancer Control Institute and Hospital, National Cancer Center) Chang, Yoon-Jung (National Cancer Control Institute and Hospital, National Cancer Center) Do, Young Rok (Department of Hematooncology, Dongsan Medical Center, Keimyung University School of Medicine) Kim, Sam Yong (Division of Hematooncology, Department of Internal Medicine, College of Medicine, Chungnam National University) Park, Sang Yoon (Center for Uterine Cancer, National Cancer Center) Jeong, Hyun Sik (Department of Internal Medicine, Sunlin Hospital, Handong University) Kang, Jung Hun (Division of Hematooncology, Department of Internal Medicine, College of Medicine, Gyeongsang National University) Kim, Si-Yung (Department of Internal Medicine, Kyunghee University Hospital) Ro, Jung Sil (Center for Breast Cancer, National Cancer Center) Lee, Jung Lim (Center for Liver Cancer, National Cancer Center) Lee, Woo Jin (Center for Stomach Cancer, National Cancer Center) Park, Sook Ryun (National Cancer Control Institute and Hospital, National Cancer Center) Yun, Young Ho

저널정보: 아시아태평양암예방학회 Asian Pacific journal of cancer prevention : APJCP Asian Pacific journal of cancer prevention : APJCP 제14권 제1호

발행연도: 2013.1

수록면: 373 - 379 (7page)

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Background: Although caregiving to patients with terminal illness is known to be a stressful burden to family members, little attention has been focused on work-related problems. We aimed to investigate employment status and work-related difficulties of family caregivers of terminal cancer patients, comparing with the general population. Methods: Using structured questionnaires, we assessed family caregivers of 481 cancer patients determined by physicians to be terminally ill, from 11 university hospitals and the National Cancer Center in Korea. Results: Among 381 family caregivers of terminal cancer patients (response rate, 87.6%), 169 (43.9%) were not working before cancer diagnosis, but currently 233 (63.7%) were not working. Compared with the general population (36.5%), the percentage of not working among the family caregivers was higher (OR=2.39; 95%CI=1.73-3.29). A major reason for not working was to provide assistance to the patients (71.6%). 40.6% of those who continued working and 32.3% of those who not working family members reported extreme fatigue. Caregivers of old age, those who were female, those with a lower household income, and those caring for patients with a low performance status were not working at a more significant rate. Conclusion: Family caregivers of terminal cancer patients suffer job loss and severe work-related difficulties, probably due to caregiving itself and to fatigue. We need to develop supportive programs to overcome the burden of caregivers of the terminally ill.

#Terminal cancer patient #caregiver #employment status #work-related difficulty

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